Conversations with the Living: The Haitian AIDS Crisis

The official blog of Conversations with the Living

The Children of Kay Angel

with one comment

If you missed the previous post, Conversations With Kay Angel, please take a moment to read Conversations With the Living’s introductory piece on Kay Angel, which talks about the work Kay Angel is doing for children in need and infected or affected by HIV/AIDS in Haiti.

We are getting to know a little about the children at Kay Angel prior to our upcoming visit, and we are grateful to Lia, the director of the orphanage, for allowing us to share some of what we are learning about the children she lives and works with everyday. All of the information in the post can also be found on Kay Angel’s website – http://kayangel.org/ (or www.weeshuisinhaiti.nl  for Dutch text).

Upon our return to Haiti, the process of meeting the children and telling their story will also give us the opportunity to meet the individuals that contribute to providing the necessary shelter, medication, housing, education and support that gives these children the opportunity to be happy and healthy.

A Day at Kay Angel

Every school day, the children wake at 5.30am to prepare for the day ahead. After bathing, getting dressed for school, and eating breakfast, one of the two nannies administer the anti-retroviral (ARV) medication, which is pre-measured by Lia before being given to the HIV-positive children. The children receive the ARV medication twice daily, and it is very important that it is taken exactly twelve hours apart with food, in order to be affective.

At 6:35am, Lia, her husband or Frantz, the orphanage manager, drive the children to SOS Enfants for the school day, where they study reading, writing, arithmetic, French, Haitian Kreyol, and the arts. Three mornings a week, at 8.30AM, they drive Martin, who is accompanied by one of the nannies due to his severe handicapped (Cerebral Palsy, autistic, microcephelia), to Pazapa, a school for handicapped children, where he receives physiotherapy.

The children are released from school between 11:30am and 1pm, depending on if they attend preschool or elementary school. The older three girls, Youseline, Melinda and Estania (who you will meet shortly) have the opportunity to participate in a dance class after school, twice a week. The older girls all love school, enjoy photography and are very loving and helpful with the younger children.

When the children arrive home from school they have lunch, do their homework assignments, play games, and are administered their medication with dinner, which is served at 6 PM.

If the children need assistance with their homework assignments, Lia, her husband, or one of the nannies with offer help. The children enjoy playing several games, like marry-go-round, where one of the kids will dance in the middle, and Legos, which they received from a Dutch Santa last year. The children also enjoy singing Haitian songs together, while paying musical chairs, using modeling clay, drawing, playing with the dogs, and playing in the front yard with the play tires.

When there is time for additional extracurricular activities, the children enjoy going to the beach, swimming in the sea, and playing in the sand. Sometimes they will even drive up to the mountains and go hiking with Lia. They take cultural, educational day trips to places like Fort Jacques in Kenskoff, and visit family members of the children that they have been able to maintain contact with.

Meet the Children

Youseline

 10 Years Old                                                                        September 13th, 2007. 6 Years Old.                                                                                                                                                                    

Photos Courtesy of Lia van de Donk

Youseline was born on June 3rd, 2001 in Carrefour, Port au Prince, and raised in Jean Rabel, Lavallee de Jacmel, an area in the mountains above Jacmel. She was raised partly by her mother and partly by her mother’s parents.

When Youseline was 5 years old her mother died of AIDS. Her father had previously passed away from unknown reasons; therefore she was left in the care of her grandparents (her mother’s parents) in the mountains of Lavallée. Unable to continue caring for her, Youseline’s grandparents placed her in the care of Sisters of Charity in Jacmel.  At that time Youseline was very sick and on her way to having AIDS.

Through the CDV/AIDS program at the Hospital St. Michel, Youseline came to Kay Angel on September 13th, 2007 at the age of 6, and became the first child at Kay Angel.

When Youseline arrived she had several sores on her skin and her immune system was very weak.  After completing the last three weeks of tuberculosis treatment, she was immediately enrolled in the AIDS program at Hopital St Michel, where they put her on ARV meds. Within two to three weeks she was already making progress; her skin cleared up, and the sores in and around her mouth disappeared.

Youseline had never attended school, did not know colors, and could not count, read or write. After being home schooled for two and a half years, to bring her up to speed, she began attending second grade, and is now first in her class. She loves school, enjoys learning, and is very smart.

Youseline is a very happy child, loves to sing and dance, and is very social. She has a great laugh and laughs all the time. She feels she is the big sister to the other eleven children

Melinda

9 Years Old                                                                                       Melinda, January 2008

                        

Photos Courtesy of Lia van de Donk

Like Youseline, Melinda’s mother was HIV-positive and passed away as a result of the virus when Melinda was very young. To make her circumstances even more challenging, Melinda’s father, who had a wandering eye, was unwilling to be tested, insisting it was only Melinda’s mother who had the virus.  These decisions led him to no longer play an active role in Melinda’s life.

Although Melinda’s grandmother made every effort to care for her, she was not able to provide the resources, and Melinda was placed in the care of the Sisters of Charity in Jacmel. After only three months she was sent back to live with her grandmother in Zoranje, northeast of Jacmel.  At that time, Melinda was five and a half years old and Kay Angel was contacted to help provide additional resources.

On December 10, 2007 Melinda was welcomed into Kay Angel. When she arrived, she had molluscum, which is a skin infection, all over her body, but she was immediately put on ARV medication and her skin cleared up quickly.

Melinda had never attended school and now attends school with her two new best friends Youseline and Estania, and is counting, reading, and writing. Last year she finished first grade as first in her class.

Estania

11 Years Old                                                                         Estania in her first month at Kay Angel

                   

Photos Courtesy of Lia van de Donk

Estania was born on July 30th, 2000, in Cyvadier, Haiti, east of Jacmel. After her mother passed away from AIDS, Estania was left in the care of her sister. While living with her sister she was taken to Hospital St. Michel, due to issues with her breathing and the coughing up of blood. At the hospital they discovered that Estania was suffering from tuberculosis (TB) and was HIV-positive.

Due to the stigma attached to such a diagnosis, Estania’s sister abandoned her out of fear and lack of understanding about the diseases she was suffering from.

In January 2008, Estania came to live at Kay Angel, where she was placed on oxygen and anti-TB treatment. Due to the severity of her illness, she was quarantined for two months until the treatment was over, and was then able to begin taking ARV medication. Estania responded well to the ARV medication and began to gain weight, but was still regularly struggling with shortness of breath. After visiting a heart specialist in Port-au-Prince, it was discovered that she had an enlarged heart, which is reported to be a common condition amongst children born with HIV. Estania has been given medication to help her heart, and her breathing has improved.

Estania had only minimal schooling before coming to Kay Angel, and since her arrival she now attends school with her friends Youseline and Melinda.

Sophie

4 Years Old                                                                           Sophie the day we found her

              

Photos Courtesy of Lia van de Donk

On October 22nd, 2007 Sophie Valentine was abandoned at the steps of Hospital St Michel. The doctors at the hospital estimated that she was born that same day, one month pre-mature, from a mother who was HIV-positive, since she tested HIV- positive. She was taken in by Lia and became the fourth child to become a part of the Kay Angel family.

Sophie was put on oxygen and IV fluids and spent the first two weeks in an incubator. Sophie was also immediately put on prophylaxes medication for her HIV status. Sophie was tested periodically in order to follow her HIV status. Her very last test, at 18 months old, came back negative. Today, Sophie is HIV negative.

Like Youseline, Melinda and Estania, Sophie is happy and in good health. Since their arrival ay Kay Angel they have been provided both physical and emotional support, helping them deal with their illnesses, as well as the emotional scars that come from their personal struggles.  Their lives have drastically changed for the better, and although each of the girls stories are unique, they are all too common in Haiti, where approximately 150,000 children are orphaned by HIV/AIDS and there were as many as 380,000 orphans before the January 2010 earthquake.

It is clear that lives are improved and saved when there is access to necessary resources, but these resources do not come easy to the individuals and organizations providing the support. Additionally, the causes of HIV infection in children point to some of the major issues surrounding HIV in Haiti; issues like education, prevention, access, stigma and overall support available to at-risk and infected individuals.

All of these young girls were infected with HIV through mother-to-child transmission (MTCT), also known as vertical transmission, which remains a significant mode of transmission in Haiti. The historical rate of mother-to-child transmission in Haiti is 27% (UNAIDS, 2004), yet programs designed to reduce the rate of MTCT have proven to be effective and are feasible in developing nations such as Haiti. In order to affectively reduce HIV infection and MTCT there needs to be an emphasis on education, testing, early diagnosis, and overall access and services to women throughout Haiti. Additionally, the deep-rooted stigma attached to the virus that often leads to at-risk individuals going undiagnosed and passing the virus onto their spouse or child must be addressed.

Conversations With the Living is telling the story of Kay Angel and the children there, because they are stories of hope existent within the harsh reality of child orphans in Haiti. We must shed light on the good work being done and what is working, as well as bring and keep attention on the work that still needs to be done. In order for organizations like Kay Angel to continue providing children life saving medication and a loving home, they must be recognized and supported.

If the work being done by Kay Angel were adopted and expanded upon, the impact would be an amazing benefit to Haiti as a whole, and bridge the gap between the children affected and infected with HIV and the communities in which they live.

We will continue to keep you posted on the documentary’s progress on our production blog and urge you to visit ad subscribe to Kay Angel’s blog to read more about the amazing work they are doing. You can find their blog and more information at http://kayangel.org/.

Special thanks to Lia van de Donk for taking the time to provide photos and written content to the above post and for allowing us to share the incredible work of Kay Angel with you.

Thank you for your continued support.

– The Conversations With the Living team

Advertisements

One Response

Subscribe to comments with RSS.

  1. Good Bless these children

    aids living with 

    April 9, 2012 at 6:41 am


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: